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NLFI was established in 2015 with the aim of engaging with the appropriate members/stakeholders, government and health care organisations in order to develop a strategy for Lymphoedema Services in the Irish Republic and to promote and support the establishment of a clinical pathway for management of lymphoedema in the best interest of patient care.
[/vc_column_text][vc_custom_heading text=”Roles and Functions of NLFI” use_theme_fonts=”yes”][vc_column_text]
- To increase awareness by raising the profile of Lymphoedema within the Irish Health Service Executive (HSE), National Cancer Care Programmes (NCCP), and the Department of Health.
- To facilitate and/or contribute to better access to treatment for patients nationally.
- To promote and petition Government Services for equity of access to services.
- To help Healthcare Services to understand the real needs of patients and practitioners.
- To increase understanding of Lymphoedema and its management, by creating and/or contributing to the development of education programmes.
- To network through the ILF framework in order to establish supportive links and share knowledge.
- To promote and document Best Practice and contribute to the overall ILF dataset.
- To identify and map all Lymphoedema Practitioners nationally.
- To keep ILF informed of new developments and issues that may arise nationally.
- To carry out when appropriate the ILF Practice Survey.
- To promote and support initiatives whose goals are to improve national/regional/local management of Lymphoedema.
[/vc_column_text][vc_custom_heading text=”Our Mission” use_theme_fonts=”yes”][vc_column_text]The National Frameworks are non-profit organisations that work nationally to uphold the philosophy of the International Lymphoedema Framework,(ILF).
The National Lymphoedema Framework Ireland, (NLFI), is committed to putting patients at the heart of it’s activities, to collaborating in multidisciplinary partnerships between all stakeholders, to advocating for the improvement of lymphoedema care for patients in Ireland through education and research, and to supporting the mission of the International Lymphoedema Framework.[/vc_column_text][/vc_column][vc_column width=”1/6″][/vc_column][/vc_row][vc_row disable_element=”yes” css=”.vc_custom_1646506783039{margin-top: 50px !important;margin-bottom: 15px !important;}”][vc_column width=”1/6″][/vc_column][vc_column width=”2/3″][vc_custom_heading text=”NLFI Activities to Date:” use_theme_fonts=”yes”][vc_column_text]
- Participation in LIMPRINT research 2016.
- Presented LIMPRINT poster ILF conference 2017.
- First Childrens Camp October 2018.
- Involvement in ILF- COM research study 2018.
- ILF meeting on education, input on Lymphoedema Benchmark Statements (LEBS) 2018.
- Poster submissions Childrens Camp and ILF-COM ILF conference 2019.
- LIMPRINT articles published in Journal of Lymphatic Biology and Research 2019.
- Genital Oedema Research 2019.
- Combined Childrens Camp with parallel Adult self management day Oct 2019.
- Collaboration with HSE, LI, ISCP, MLDIreland to produce information documents for management of lymphoedema during Covid-19 pandemic, June 2020.
- Developed Position statement on patient lymphoedema risk reduction Jan 2021.
- Participation in the Italian Phlebology/Lymphology web congress, Feb 2021.
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